As a caregiver, you can play a vital role in every stage of your loved one’s journey with transthyretin amyloid cardiomyopathy (ATTR-CM), from helping identify early symptoms to assisting your loved one after a diagnosis is confirmed.
If someone you love is diagnosed with heart failure and you notice them struggling with seemingly random, unresolved health issues like:
The steps you take to help them communicate with their cardiologist can help them to better manage their disease. You may even notice things that your loved one does not, which makes your observations even more important.
“One of the things that I noticed most was the numbness in her legs and in her hands, which made it hard for her to grip certain things, and obviously with walking, it’s hard for her to know which leg she's got going forward.”
There is no one way to be a caregiver. The responsibilities and roles different caregivers have vary depending on the unique needs of their loved one who is living with ATTR-CM. But there are some helpful things to keep in mind as you navigate you and your loved one’s journey together.
Being a caregiver is a critical but difficult role to have. It’s important to have the support you need while you’re supporting your loved one. Below are some caregiver support organizations and amyloidosis advocacy groups.
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