It is important to talk to your doctor about the symptoms you are experiencing. They could be caused by something more serious than you realize, like transthyretin amyloid cardiomyopathy (ATTR-CM).
Remember, your heart may be sending you a message! When it comes to ATTR-CM, it is all about being proactive. While overall awareness of ATTR-CM is low, advocating for yourself or a loved one with the disease and asking your cardiologist questions can help you get many of the answers you need.
Signs and symptoms:
Let your cardiologist know if you have heart failure and any of these signs, symptoms, or conditions:
While these signs and symptoms don't necessarily indicate that you have ATTR-CM or another condition, any one or combination should be mentioned to your cardiologist. The more you tell your doctor the better they can help you understand your condition.
Family medical history:
ATTR-CM can be hereditary. To the best of your ability, make note of any heart-related issues associated with your relatives on either side of your family.
Your medical history, records, and test results:
You may have already seen several doctors to understand why you are feeling discomfort. If you’ve had any tests like an electrocardiogram (ECG) or echocardiogram (ECHO), sharing the results with your cardiologist can help. Previous heart surgeries may also prohibit certain types of testing for ATTR-CM, so be sure to note if you’ve had any procedures or device implantations.
List of questions:
ATTR-CM can impact each patient differently, and your family, work, and social needs may differ. Be open about your questions and concerns.
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