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And learn more about a serious, underrecognized, and underdiagnosed condition known as ATTR-CM. Download a discussion guide to help you prepare for your next visit with your doctor.

TALKING TO YOUR DOCTOR

It is important to talk to your doctor about the symptoms you are experiencing. They could be caused by something more serious than you realize, like transthyretin amyloid cardiomyopathy (ATTR-CM).

Download our doctor
discussion guide here

WHAT TO BRING TO YOUR NEXT VISIT

Remember, your heart may be sending you a message! When it comes to ATTR-CM, it is all about being proactive. While overall awareness of ATTR-CM is low, advocating for yourself or a loved one with the disease and asking your cardiologist questions can help you get many of the answers you need.

AWARENESS OF ATTR-CM IS LOW

PARTNER WITH YOUR DOCTOR TO FIND ANSWERS

Signs and symptoms:
Let your cardiologist know if you have heart failure and any of these signs, symptoms, or conditions:

Heart failure with preserved ejection fraction (HFpEF)
Fatigue
Shortness of breath
Swelling (edema) in the legs and feet
Irregular heartbeat (cardiac arrhythmia)
Heart and blood pressure medicines make you feel worse
Diagnosed with carpal tunnel syndrome in both wrists
Hand pain, numbness, or tingling in your fingers
Pain or numbness in your lower back or legs, which may be caused by lumbar spinal stenosis, or narrowing of the lower part of the spine
Atraumatic biceps tendon rupture
Knee or hip replacement
Gastrointestinal issues, such as nausea, diarrhea, or constipation
Unexplained weight loss
Lightheadedness when you stand up

While these signs and symptoms don't necessarily indicate that you have ATTR-CM or another condition, any one or combination should be mentioned to your cardiologist. The more you tell your doctor the better they can help you understand your condition.

Family medical history:
ATTR-CM can be hereditary. To the best of your ability, make note of any heart-related issues associated with your relatives on either side of your family.

Your medical history, records, and test results:
You may have already seen several doctors to understand why you are feeling discomfort. If you’ve had any tests like an electrocardiogram (ECG) or echocardiogram (ECHO), sharing the results with your cardiologist can help. Previous heart surgeries may also prohibit certain types of testing for ATTR-CM, so be sure to note if you’ve had any procedures or device implantations.

List of questions:
ATTR-CM can impact each patient differently, and your family, work, and social needs may differ. Be open about your questions and concerns.

DEMPSEY’S HEART TALK

DEMPSEY SHARES HIS ADVICE FOR STARTING THE ATTR-CM CONVERSATION WITH YOUR DOCTOR.

You may consider asking some of the following questions:

Based on my symptoms, medical history, and family history, do you think ATTR-CM could be the cause of my heart failure?

I understand this condition expresses itself in a variety of ways. Should I seek additional specialists to be a part of my care team?

Do you have experience diagnosing ATTR-CM, or can you recommend a local specialist?

Are there any patient support or advocacy groups you recommend for emotional and mental support or additional information on ATTR-CM?

Do I need additional tests to confirm my diagnosis? If so, whom at your office should I speak with, and will the results of my test impact my treatment plan?

If ATTR-CM is determined to be the cause of my heart failure, how can I manage my disease?

How quickly could this condition progress?

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